{"id":2058,"date":"2022-04-02T06:21:04","date_gmt":"2022-04-02T11:21:04","guid":{"rendered":"http:\/\/lgllsupport.com\/index.php\/home\/"},"modified":"2022-12-09T09:27:31","modified_gmt":"2022-12-09T14:27:31","slug":"home","status":"publish","type":"page","link":"https:\/\/lgllsupport.com\/","title":{"rendered":"LGL Leukemia Support"},"content":{"rendered":"\n
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This site has information, support, and resources about Large Granular Lymphocyte (LGL) Leukemia, a rare chronic leukemia affecting approximately 1 in 3 million Americans every year. Patients and caregivers are welcome here and I hope that you feel comfortable in our supporting community.

LGL Leukemia was discovered by Dr. Thomas P. Loughran, Jr. in 1985 – he currently sees patients at the LGL Leukemia Program<\/a><\/span> at the University of Virginia Cancer Center in Charlottesville, VA. UVA also maintains the only blood & tissue registry<\/a><\/span> of blood and tissue from LGL Leukemia patients, which helps doctors and scientists research this rare disease.<\/p>\n<\/div><\/div>\n\n\n\n

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“For chronic LGLL patients, there is no significant effect on lifespan.”<\/p>\nLGLL: Diagnoses, Therapies, and Hope (University of Virginia, RareShare, Rare Genomics Institute)<\/a><\/cite><\/blockquote>\n<\/div>\n\n\n\n

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LGL Leukemia is a very survivable leukemia. To quote a 2018 presentation<\/a><\/span> (accessible via UVA’s Learn About LGL Leukemia<\/a><\/span> page), “For chronic LGLL patients, there is no significant effect on lifespan. The one major exception to that is patients can still die from a sudden bacterial infection that almost always occurs when the Neutrophil count is extremely low.”<\/p>\n<\/div>\n<\/div><\/div>\n\n\n\n

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